Normans Rare Guitars | 2 years ago

My dear friend’s 21 year old nephew, Seth, has a very rare children’s cancer called Synovial Sarcoma. This cancer is so rare that it has no cure and few treatment options. Doctors who specialize in treating Sarcoma cancers might see one or two patients a year with synovial sarcoma, but most don’t even see that many.

CLICK HERE: https://www.FollowingSeth.com

Since SS is so rare, there is no centralized location for research data collection. This means that patients have to resort to connecting with other patients on Facebook to learn about diagnosis, treatment, side effects of treatment and next best options when their doctors don’t know what to do next.

This is due to lack of funding for research. Funding for cancer research is massive in the United States, but while this is true, approximately 1-2% of all cancer research funds go to researching Sarcomas and only a mere fraction of that 1 percent focuses on Synovial Sarcoma.
Amazingly, Children’s Hospital of Philadelphia has agreed to focus research on Synovial Sarcoma by creating a tumor bank for centralized research and a national tumor board for better patient treatment options.

Seth has undergone many treatments over the last 2 years and he is now beginning a clinical trial in hopes that his cancer will stabilize. With your help we can fund focused research and be a part of finding a cure.

Donations can be made directly to the Spence Family Synovial Sarcoma Fund at the Children’s Hospital of Philadelphia’s website and 100% goes to the Research Fund. You can also check out Seth’s website to learn more about Seth’s journey and how to donate.

CLICK HERE: https://www.FollowingSeth.com

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